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    Trump administration promotes patient ownership of health data

    In a move to put patients in control of their medical records as well as promote interoperability, the Trump administration has rolled out its MyHealthEData initiative.

    “The time is now to align every facet of the federal government and private sector to share information,” said Jared Kushner, innovations director for the White House, at the Healthcare Information and Management Systems Society (HIMSS) Annual Conference in Las Vegas on March 6. “Interoperability is about saving lives. Up to 400,000 people die each year because doctors don’t have access to their complete medical histories.”

    Kushner added that interoperability will unleash data that will drive innovation.


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    Seema Verma, director of the Centers for Medicare & Medicaid Services (CMS), reaffirmed the administration’s commitment to value-based care while promising an overhaul to the Meaningful Use program for EHRs and an overall updating of the agency’s guidelines to better align it with a digital world.

    “It’s amazing how seldom the patient is mentioned in discussions on value-based care,” said Verma. “We will not achieve the goals of value-based care until we allow patients to make their own decisions based on quality and value, and until we do that, healthcare will continue to grow at an unsustainable rate.”

    Verma said that Americans want more accountability for healthcare, and want their doctors spending more time with them and less time on the computer. As a result, she said that CMS has adopted a patients-over-paperwork approach.

    While tremendous progress has been made in doctors adopting EHRs, it is rare that the data is shared across health systems or providers, leading to patient frustration and physician inefficiency.

    “Currently, there is a financial interest for the EHR systems to hang onto the data for their patients,” said Verma. When that happens, tests are repeated and healthcare dollars are wasted. “Fax machines are still the go-to device for healthcare information,” she added. “The EHR still doesn’t do the job of making patient records easily available.”

    Next: Giving patients data ownership

    Todd Shryock
    Todd Shryock, contributing author


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    • [email protected]
      This concept has been put into motion to directly benefit the consumer. See PatientDirected.io website. Todd, this should really be part of the conversation
    • [email protected]
      I like this idea. Lets give the patients back their personal responsibility for their bills and have them deal with the insurance companies they pay. Make the insurance companies answer to their customers and take us out of the middle. This will save us thousands of hours of waiting on persons who have denied coverage, and arguing with persons paying us 5 cents on the dollar. Let the patients pay us for their services and the insurance company can deny them compensation for services rendered. Great idea. Give people back their responsibility. Let us bill the customer, and eliminate an employee that spends all day every day fighting the system.

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